Many Parent Carers benefit from the support of other parents in a similar position. Support is available through face-to-face groups, and increasingly through online forums.
Some support groups are related to a particular condition, and others offer more general support, or support around specific issues, for example, securing suitable education.
The charity Contact: for families with disabled children runs a closed Facebook group for parents and carers of disabled children, and is a place for members to chat, listen and ask questions in a safe and supportive environment: https://www.facebook.com/groups/ContactFamiliesGroup
Support Groups for specific conditions
Contact: for families with disabled children has an A – Z directory of conditions, including those that are rare. As well as information about the condition, they list any UK organizations or support groups which exist: https://contact.org.uk/conditions/